A absolute "must" reading material, esp. if you are a parent or want to be one...

I'm writing this entry to recommend a terrific book ~ It's a book called "Schuyler's ::pronounced SKYLER":: Monster"

This is a book written by the father of a little girl that was born with a genetic disease/disorder called "Polymicrogyria" (other links ~ Poly II )it is a disease that affects children but not all, with some degree of global developmental disabilities or delays, seizures, feeding difficulties, respiratory problems, motor dysfunction and mental retardation. It is difficult to make a predictable prognosis for children with the diagnosis of PMG because each child is very unique in their presentation of this disorder. In Schuyler's case it affects her speech predominately & some of her motor skills (hand coordination in her case) from what I understand in reading the book. 

Cindy and I read this book in one day!  Cindy wanted to read this book because her nephew has "Head Trauma" that happened directly after his birth... because of Cindy's and her Mother's (who both have custody of her nephew) experiences with society in general and the school system as it pertains to how they handle head trauma's (head trauma happens either during the birth itself or after birth) vs. genetic disorders (genetic is a predisposition or "to be born with" a disease a few examples are Cystic Fibrosis, Down Syndrome, Sickle Cell Anemia, Hemophilia).  Again, in Schuyler's case the Polymicrogyria is a "genetic" disorder not a head trauma.

Schuyler's Dad wrote this book and writes it very openly and honestly ~ I love the way he writes and the fact he is so honest with what his and his wife's feelings are etc. He also has a blog about his experiences, thoughts etc. here "Fighting Monsters with Rubber Swords" .  If you get a chance, purchase the book, read his blog.  You won't regret it.

A picture of Schuyler and her Father.